Special educational needs and disabilities have been part of my life for as long as I can remember. I grew up alongside my sister Gemma, who had cerebral palsy and significant physical disabilities. Much of my childhood was spent in and out of hospitals with her and our family.
I helped care for Gemma, looked after her, helped her shower and was there through the difficult times. Growing up alongside her taught me something I have never forgotten: see the person before the disability or diagnosis.
As an adult, I have my own experience of ADHD, and I am also a parent to children with their own special educational needs.
I have lived the appointments, assessments, paperwork and uncertainty. I have felt overwhelmed, isolated, lonely, confused and worried.
I have questioned myself and carried the guilt that somehow my children’s needs were my fault. I have sat with paperwork I did not understand, been passed from one organisation to another and wondered why finding the right support could feel like going around in circles.
I have experienced what it feels like to keep asking questions and still feel unheard, misunderstood or judged.
I have also learned that asking for help is not failing your child. Sometimes, you are simply trying to find your way through a system that can feel incredibly complicated when you are already exhausted.
I have seen how special educational needs and disabilities can affect the whole family. I have experienced the difficult days, the exhaustion and the need to keep pushing, but I have also experienced the love, determination, progress and small victories that mean so much.
That is why I created The SEND Harbour. I wanted to create a place shaped by real life and real experience, where SEN parent - carers and families can come as they are, without judgement, and know that the person beside them genuinely understands.
The SEND Harbour is something I am passionate about continuing to build. I am not doing this just for myself. I want my children to see that having ADHD or facing challenges does not mean you cannot have ambition, achieve things and make a difference.
My sister Gemma will always be a part of that journey too.
The SEND Harbour carries a little of her with it, and continuing this work is one of the ways I keep her memory close.
For me, it is about seeing the whole person, not just the disability or diagnosis.